We had our best night’s sleep last night with only one small wake up and cry in the middle of the night. Settling into his own bed and actually living through the day rather than choosing to nap (like he did at the airbnbs because “sleeping is better than life here”) has really helped I think.
We had breakfast outside at the picnic table and started our day with sunlight on our faces and the best country smells in the warm summer breezes.
The majority of the day was filled with simply trying to figure out how to live at home again. Although home is the same, he is not, and that is definitely a feeling he is struggling with right now.
Thankfully we had no steroid outbursts today 🙌.
It was one of his best buddy’s birthday today, and Lochlan chose to go to the party because he didn’t want to miss out on his friend’s special day. He didn’t talk much, and he didn’t play (physically he’s too weak and still can’t walk well), but he was there simply bearing witness to the festivities of swimming in the river, scavenger hunts, and kids being kids outdoors. He did get a little overwhelmed and needed to take a break inside for a bit, but when we talked about it he said he just felt sad for not being able. I am so grateful for good friends who simply accept us and welcome as we are.
It’s hard to keep spirits up but before bed I asked Lochlan to tell me one happy thing about his day, and he thought about it for a while and finally said, “I got to live one more day.”
One step at a time, we will get him through this so he can be back in action and join in on all the fun at the birthday party this time next year.
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