Today was a better day… still hard but better than yesterday.
We started our day with a good family cry together. We talked about life and all the changes in it. Lochlan wanted to know more about his leukaemia and what to expect. We explained that we will meet with the doctors tomorrow while he’s in surgery and they will tell us more. That a lot depends on the results of his bone marrow test. That we really pray that there is 0% residual disease 🙏. And he asked us not to hide anything from him. He wants to know it all, and we can respect that even if it’s scary and feels weird when all we want to do as parents is protect him, his heart and spirit.
We got some “good” news, if we can call it that, that the next 57 days of treatment, after tomorrow’s trip to Halifax, will be here at our local hospital. I am grateful for that because it means we get to be home. It’ll mean some weeks we will have daily trips into town (45 minutes away), for 15 minute appointments, but it’s way better than being away. And with the following month being away from home we will savour every ounce of home we can get.
Lochlan was still sore. So it was a quiet day. He didn’t want to walk much because of the pain so we kept things central and carried him when he needed to be upstairs or downstairs. His spirits were up a little, and there was a little hope in that. He had a good nap, and then spent lots of time outside with us. He and Mitch played chess together while I was making supper and I realized that leukaemia is like a game of chess—strategic, intense, and unpredictable. Every move matters, from diagnosis to treatment. This complicated game where courage, resilience, and hope are the key pieces on the board. We’re clinging to them with everything we have.
Tomorrow is a big day. Please keep us in your prayers.
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