We got up bright and early and headed to the hospital to have bloodwork and chemo. Amazingly enough he did so well with his nerves and stress about getting his port accessed! A few tears but then said, “I’m just disappointed that I thought it would be worse than is was!” Even the nurse commented on how calm and more confident he was today!
Unfortunately what was supposed to to be a quick trip ended up being a whole day since his hemoglobin levels were too low. So he needed to get two bags of blood to help bring the levels up. Each bag takes approximately 2 hours to go in, and then there is an hour observation at the end. So we never left until nearly 6:00.
Thankfully Mitch was working in town today so he dropped off lunch to us— but Lochlan was sad and in a bad mood for having to stay so long so he barely ate. He said he’s rather wait until we went home to eat. Despite his leukaemia he is still as stubborn as ever. Mitch ended up going home after lunch and working from home so Luke wouldn’t be home alone the entire day. Grateful for understanding bosses, and for the ability to work from home.
Unfortunately we didn’t get to see Mitch and Luke before Lochlan’s bedtime as they were at fencing practice, and Lochlan has an extra early wake up call for a lumbar puncture and more chemo at the hospital in the morning. We both agreed we miss our family, but are grateful to be sleeping in our own beds tonight (well, technically his bed because he doesn’t feel safe sleeping alone yet— it’s been 2 full months since I’ve slept in my bed).
As I sit here scrolling through the beautiful faces of everyone’s children’s back to school pictures I just have to say I hope you realize just how blessed you are. I think so many of us take our children’s health for granted — before this I was thankful but not as thankful as I should have been. I am not jealous of you all. I wouldn’t trade places with you… God put us on this journey for a reason and I have to follow Him, one step at a time through. But, I want you all to know that each day with your babies (tiny and big), is a precious gift. Don’t ever forget that.
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