Day 51 of Lochlan’s healing journey with nearhaploid leukaemia started bright and early. We left the house at 6 am to head to the hospital to prep for his lumbar puncture. Although he’s had the procedure done a handful of times already through the last few months, this was the first one here at our local hospital (the rest were at the children’s hospital). He was a little nervous because things would be different and I couldn’t go in to the OR with him (usually in Halifax I can until he falls asleep), but thankfully his favourite nurse was there every step of the way and he felt safe going in without me.
He did very well and the doc who did the procedure was amazed at how calm and confident he was. I felt that the wait for him to be released from recovery was extra long compared to Halifax, but I knew he was in good hands and tried my best to breathe and wait patiently.
When he finally was out of recovery they took him up to paediatrics for his daily dose of chemo. And thankfully we were home by lunch time.
I also had a zoom call with genetics from the children’s hospital. They don’t see any red flags to think this is genetic, but they did take a skin sample from Lochlan that is culturing and they will test just in case.
After such a heavy morning I went outside, laid on my lawn in the sunshine, had a good cry and just took a little time for me. Then I made Lochlan join me for a few hours, breathing in the fresh country air and having some really great conversations.
He told me he doesn’t really worry about his cancer anymore. He knows the doctors and meds are doing all they can, and that we are doing everything we can from a holistic perspective and he feels so loved and supported by family, friends, holistic practitioners, and complete strangers. He said he feels the prayers. He said he isn’t afraid of death, because he knows heaven is paradise and that he’ll meet God up there. But he said he believes that he won’t die from this cancer…. He said he might but he doesn’t think so. This entire conversation was so non-chalet… no tears, no fears, no stress, and he continued to blow me away with his strength. Today I’m grateful for the peace he has in heart.
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